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ea0095p81 | Adrenal 2 | BSPED2023

National service evaluation of care for children and young people with congenital adrenal hyperplasia in the UK: Survey responses from patients and clinicians

Lawrence Neil , Bacila Irina , Ji Xiaochen , Faisal Ahmed S , Alvi Sabah , Bath Louise , Blair Jo , Cheetham Tim , Crowne Liz , Davies Justin H , Dattani Mehul , Gevers Evelien , Krone Ruth , Patel Leena , Thankamony Ajay , Randell Tabitha , Ryan Fiona , Elford Sue , Blackett Sallyann , Krone Nils

Aim: To quantify difference in service provision for children and young people (CYP) living with CAH across the UK.Methods: A national service evaluation using online questionnaires circulated to patients and clinicians from secondary and tertiary UK centres managing CYP with CAH, and via the Living with CAH support group mailing list.Results: Total of 195 responses rel...

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National service evaluation of care for children and young people with congenital adrenal hyperplasia in the UK: Survey responses from patients and clinicians

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